Thursday, December 22 2016
When your kid is visibly different, you worry about how the kids at school will treat him. You worry about the moment he realizes his difference and feels the pain that come with the stares and dumb comments.
Wednesday, December 21 2016
Jax got his new eye!
It's very strange seeing him without his big blue eye, and it going to take some getting used to, but there will be no more surgeries, no more glaucoma and no more eye drops.
We think he looks so great
Tuesday, December 20 2016
Today was the first of 2 full days of eye appointments to get Jax's prosthetic eye made. This marks the end of an emotional stage for us within Jax's journey with Peter's Anomaly.
At the mall, during a 3 hour break in between appointments, we found a little bag labeled "finders keepers" on the seat of one of the kiddie rides by the food court.
It's funny how little reminders of all we have to be thankful for pop up when we need them most. The end of our journey with Jax's "sick" eye marks the beginning of a new one with our sweet boy. That means more Christmases, birthdays, and memories.
The family that left this little bag with one of our little man's favorite toys inside doesn't get to start a new chapter with their little man. They're starting a different journey now after their son's battle with cancer. I pray they somehow find peace during their first Christmas season without Brooks.
Wednesday, December 14 2016
I read this quote in a book today and it took me back to the day we found out Jax was born blind. All I remember feeling was fear and devastation. I told myself over and over that it wasn't supposed to be this way.
3.5 years ago, I would have tried to convince myself that this quote was true, but deep down, I wouldn't have truly believed it.
Today, after all we have been through these past few years and all of the lessons we have learned along the way, my heart knows that I needed Jax in my life just the way he is. I didn't expect this wild journey that he has taken us on, but he's showing us the joy life can bring when you accept it as it is and learn to see how perfect all of life's imperfections truly are.