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Alyssa's Blog
Thursday, December 22 2016
Pajama Day

When your kid is visibly different, you worry about how the kids at school will treat him. You worry about the moment he realizes his difference and feels the pain that come with the stares and dumb comments. 

Today was pajama day at school and the last day before Christmas break. It was also Jax's first day back at school with his brand new prosthetic eye. He was excited to show his teachers and his friends his new look. 

When we walked into the school today, and everyone saw Jax was back, they all came running and circled around him. I could hear the ooh's and ahh's from all of the kids. They told him how great his new eye looked and they were so happy for him. 

I leaned down and said, "I've got to go, I love you buddy." His 4 and 5 year old friends were still crowded around him, complimenting his new eye, and one of his buddies smiled, touched his shoulder and said, "Jax, I love you too!"

It was the most precious moment and I barely made it out the door with dry eyes. My heart was so full. 

I will be forever thankful for the reassurance that little boy gave me today. I know there will be mean comments in Jax's future, but there will also be friends that love him and remind him that he is amazing just the way he is.

Posted by: Alyssa Davin AT 05:48 am   |  Permalink   |  Email
Wednesday, December 21 2016
Jax's New Eye

Jax got his new eye!

It's very strange seeing him without his big blue eye, and it going to take some getting used to, but there will be no more surgeries, no more glaucoma and no more eye drops.

We think he looks so great 

Posted by: Alyssa Davin AT 05:51 am   |  Permalink   |  Email
Tuesday, December 20 2016
Be Brooks Brave

Today was the first of 2 full days of eye appointments to get Jax's prosthetic eye made. This marks the end of an emotional stage for us within Jax's journey with Peter's Anomaly.

At the mall, during a 3 hour break in between appointments, we found a little bag labeled "finders keepers" on the seat of one of the kiddie rides by the food court.

It's funny how little reminders of all we have to be thankful for pop up when we need them most. The end of our journey with Jax's "sick" eye marks the beginning of a new one with our sweet boy. That means more Christmases, birthdays, and memories.

The family that left this little bag with one of our little man's favorite toys inside doesn't get to start a new chapter with their little man. They're starting a different journey now after their son's battle with cancer. I pray they somehow find peace during their first Christmas season without Brooks.

Posted by: Alyssa Davin AT 07:08 am   |  Permalink   |  Email
Wednesday, December 14 2016
Life's Imperfections

I read this quote in a book today and it took me back to the day we found out Jax was born blind. All I remember feeling was fear and devastation. I told myself over and over that it wasn't supposed to be this way.

3.5 years ago, I would have tried to convince myself that this quote was true, but deep down, I wouldn't have truly believed it.

Today, after all we have been through these past few years and all of the lessons we have learned along the way, my heart knows that I needed Jax in my life just the way he is. I didn't expect this wild journey that he has taken us on, but he's showing us the joy life can bring when you accept it as it is and learn to see how perfect all of life's imperfections truly are.

Posted by: Alyssa Davin AT 06:42 am   |  Permalink   |  Email
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